December 1, 2006

We apologize for not updating sooner but we are still waiting on the final MRI report from Dr. Burzynski. According to our radiologist as well as Houston's Samantha's MRI results were not very good. Apparently there is new growth and progression in the other areas. We were really expecting to hear something a lot better than that as she seems to be doing better the past week and a half. I guess we didn't realize how much the hydrocephillis was bringing her down.
We should hear from Dr. B today weather or not he sees any response to this therapy or if he feels it is just not going to help her. She has had quite a few interruptions from treatment that past six weeks with her two hospital stays and a rash she had. We think he may take that into consideration along with the fact that she has yet to make it to the dose she needs to be at.
We are once again researching other avenues but there really isn't much out there. These decisions are the hardest to ever be faced with. We just pray that we are led in the right direction for our little princess. Thank you for all your prayers, we will let you know as soon as we hear from Dr. B.
Love,
Audra, Kurt, Christopher, Samantha, & Jason.