Hope for Samantha

Tuesday, October 03, 2006

October 3, 2006

We are all settling in at home once again. Samantha has started back with her homebound teacher and is back to learning. She is still having trouble with seizures which really limits what she can and can not do. She seems to be tolerating the meds okay but is excessivly thirsty and hungry from the steroids. We are hoping to start decreasing those soon as they are also disrupting her sleep which may be adding to the seizures. It seems to be a cycle we can not get away from. She has her next MRI scheduled for October 20th. Hoping and praying real hard that we see some positive signs from this new treatment although we were told it may be to early to see anything real significant but it is possible.
Samantha still has a pretty low energy level (may also be due to interrupted sleep) but she is trying to get motivated here and there. Her interests are minimal at this point but she does get bored. We would really love to see her be able to enjoy herself again, please pray for that for her. She really deserves some fun. Will update again when we have some news to report.
With love,
Audra, Kurt, Christopher, Samantha, & Jason

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