August 28, 2006

Samantha had her evaluation today at the Burzynski clinic. It was a long day for all of us but she did real well. We did a lot of talking with doctors and nurses, she had a physical and labs done. Her labs came back good enough to start treatment we are just waiting on the approval of the FDA (which is standard) and her MRI and she will be able to get going on it. We are hoping for a start date of thursday. From what we were told today she will be spending about 2 hours a day M-F in the clinic and about 45 minutes on Saturday and Sunday. These visits will consist of Kurt and I being taught how to access and flush her port how to change her medication bag (which she will carry in a back pack) and drawing labs. They will start out with a low dose of medication and work up depending on how she tolerates it. They will moniter her white counts and platelets 2 times per week and her potassium and sodium levels every 2 days. So far that is all we have been told. Looks like we will not have to be in the clinic at all tomorrow so we will try to find something fun to do for a while to keep her busy. We will update again when we get started. Pray that this is the answer for Samantha to have quality back in her life and ultimately be cured of this disease. Thank you for your continued love and support.
Love,
Audra, Kurt, Christopher, & Samantha